NDIS

The process to get the NDIS has been a full time job. But I'm not kidding. I feel very fortunate that I allowed myself to have a bunch of time to focus on this 'project', I had no idea how much time I'd need though. The actual dollar amount Tova recieved is pretty incredible. The Australian Government is generous. Our tax system is generous, however I do get a bit sick of people saying 'I'm paying for that'. Tova is greatful. It's going to change her life here in Australia, she's Australian and she isn't going to have the same opportunities as the many of the main stream Australians. We are so lucky to live in Australia.

Back at school

Tova has started grade 5. I've been feeling a bit sick about her being almost in grade 7 (I know, 2 years away, but time is going so fast and each year it goes faster). Most of the kids in her class are going to grade 7 next year. Her school doesn't actually work by grade, so many of the kids are older than her in her class. It's going to be strange for her next year when she's not with those kids, they've been in class together for years and years.

This evening Tova had a really hard time trying to fall asleep. She cried/whimpered for an hour. Yuval had checked her a few times and said that the noise of the crickets was really bothering her. I got her after an hour and she was so upset about the crickets, and then the bats started, and then the possums and Zev (our cat) has a really bad cough. omfg. I ended up running around the back yard, in the dark, telling all the wild-life to shut the f#ck up. Tova took the next few hours to fall asleep, in OUR BED. I understand that feeling, when you are trying to sleep but there is one annoying sound that is driving you nuts and you just can’t let it go.

Since returning from Adelaide we’ve noticed some really great things with Tova, such as her fine motor skills improving, her conversation/sentences getting longer and more complex (all in Auslan, mostly finger spelling) and I watched her throwing a ball to the dog the other day, it was amazing. I haven’t seen her throw a ball like that before. Oh and her telling us when she needs to go to the toilet has improved 100%, we are so impressed with her.

Camp Sababa

Tova is in this video a few times, pretty much anytime there is a piano/keyboard, that's Tova playing it. Also at about 0.57, I believe that's the back of her sitting with her buddies, probably talking about piano/playing piano. And 2.43ish on the trampolines

Last year (in October I think) Tova went on camp for 4 days. This was the longest I've ever spent away from Tova in her life. Three entire nights.
She had a ball!! No parents for 4 days. The lead up was a bit difficult for me. I was worried. About everything. To help me get over some of my worries, the two buddies that would be spending all their time with Tova at camp and the 2-3 team leaders came to our house various times in the weeks before camp, to learn all about Tova and her ways.
Let me tell you about these amazing buddies. HOLY CRAP, these kids have just completed grade 12 and fresh out of exams, they not only go away with a bunch of kids, they go away with a bunch of kids with additional needs. NOT what I was doing right out of grade 12. I wish I knew what they know. I wish I had done anything even remotely like this at that age. Their parents have so much to be proud of.

Tova participated in so many things I didn't think she would, and things she won't do with us, like go to the beach, stay in her bed and have fun at the pool! She did everything, and they said she loved all of it. I think having two 'servants' at her beck and call helped. I didn’t miss her, I felt confident and happy she was well looked after. Also the camp updated us each night with photos and a few words by text. Perfect.

A few months before that Nissim went on Camp SOCS which is the camp for Siblings Of Camp Sababa. This was the best thing for him. He got to meet lots of kids with brothers and sisters that have special needs and talk about it with people that ‘get it’.

Stunning Princess at Future Footprints

Tova having fun at Future Footprints in Adelaide.

Conductive Ed Adelaide

We are here in Adelaide again for CE therapy! I feel bad that it's taken me a year to update the blog. I'm going to try and blog here once a month, wish me luck. < br /> Again, we are staying at the same place as each year and again, Tova and I did the big drive up here. Of course google lied and told us it would take 8.5 hours.. No, no, no, such lies. It took us 12 long hours. Next year I’m breaking it up and sleeping somewhere halfway. It’s too hard to do that drive in one day by myself.

We used to stop at Kaniva for the night, but Tova was like a little satan to spend the night with, not sleeping, climbing in and out of every bed, trying to get into the bathroom to stand in the toilet or what not. Such pleasures. But I think that I’ll just set her up with movies all night and put a bed over the bathroom door, or chair, or anything to block it and try and sleep myself. It doesn’t matter how tired she is the next day, it matters how tired I AM! The kids and I will fly home in a few days and Yuval will do the drive home. He can at least stop the car and have a sleep as he will be alone. I can’t do that with a Tova in the car. I M P O S S I B L E.

I think Tova is having fun at Future Footprints. She’s not so stressed about going there each day, she does ask to stay home lots and does ask to be on holidays, but she also kicks me out of the door when we get there.

The boys arrived about a week ago, so we’ve all been together. Lots of beach and Dolphin time, lot of relaxing and enjoying the Tropical Adelaide heat.