Hello Croup!

Tova is home today. No school. She is of course in very good spirits, but isn't breathing quite right. No other symptoms.

I’ve given her Pred and Panadol and she has improved.

It’s nice to have her around the house, she is such a nice little friend. Currently she is in the other room watching a Mr Bean movie. I can hear a Croupy laugh from time to time.

Other than this Croup day, she has been really well. Still no hospital, it’s been well over a year.

Her latest naughtiness has been escaping from car seats while driving. So, that’s fun for the driver. We had to go and buy new car seats. We got 3 new booster seats, a few Houdini straps and a special harness for one of the boosters.
That’s one for the school bus, one for my car, one for Yuvals car. We gave Grand pa an old baby seat that she still fits into (mostly) and a houdini strap, that will stop him having to ocky strap her in his car when he picks her up on Friday (I wish I had a photo of that).

Oh yes, we had to dismantle her beautiful bed and buy her a new one that is close to the ground. She had started thinking that climbing up the bed and throwing her self headfirst to the floor was a good idea.. I disagreed.

So I sold her old bed and got a new one

We have changed horse riding centres and are really happy with the new place. Tova has of course taken this naughty behaviour to horse riding too. Luckily there are two side walker to catch the naughty child. But she also likes to grab their glasses (if they are wearing them) and pull their clothing. It’s all to get the attention of the coaches, whom she loves interacting with, because they are amazing.

It’s great strong willed behaviour, that seems naughty, but it’s great to see her determination and crazy humour. Saying ‘No’ to her delights her even more, so it’s a tricky one.

I may take her to Dr Craig today (www.signaturewellbeing.com.au). I have to get my mother to drive us as she has borrowed my car, since she decided to crash hers, into a police car.

It's been ages

Tova has had croup a few times. Needed Pred, got better - at home - and stayed out of hospital.
Perhaps what they told me is true "she will grow out of it"!
What ever the reason, it's fabulous.

Tova is getting better at walking with her sticks and she is fantastic at standing up. She stands, standing.. from sitting she can get her self into standing and stand there. It’s really quite amazing!
I really don’t have much else to say. Everyone is healthy, happy (most of the time - who ever said we had to be happy all the time anyway?), and doing well at school.

Tova wanted to fly on a broom. And got cross when it didn't fly.
Tova wanted to fly on a broom. And got cross when it didn't fly.

Good old croup

The kids are back at school. Grade 1 and grade 2.

They started on different days (at different schools) so I took each one for their first day. They were both happy to be back at school and like magnets found their friends straight up.

Tova got sick on Monday night. TERRIBLE breathing. We gave her Pred and ventolin.. She improved enough for us to not call the ambulance. But it was a close call.
It was a hard night. She wouldn’t sleep and wanted to climb on everything and was wide awake.. Yuval and I weren’t.. It was torture. She was kinda crazy breathing and crazy awake from 1.30am till 4am… Eventually she went to sleep.
Of course she didn’t go to school on Tuesday. She watched movies all day on Tuesday. She discovered Cast away (Tom Hanks) and loves it Wilson.

Tuesday night she woke crying at 3 or 4 am.. She was so upset and breathing very strangely, I hadn’t heard that kind of strange breathing before. She was also shaking and I guess she had a fever. So we quickly gave her Panadol to reduce the fever. She was quite distressed but after the drugs kicked in she relaxed and fell asleep on me! So we knew she was sick. It was so scary. We aren’t used to this different sickness. But the Panadol seemed to work, which was comforting.
She woke up at something like 11am on Wednesday and I took her out onto the deck to get some sun and fresh air. The rest of the day was spent watching Castaway.

She stayed home Thursday and Friday too, she could have gone to school on Friday, but what was the point. She is heaps better now. So school on Monday please

Nissim seems to be enjoying himself at school in Grade 1. He has good friends and so far the school seems great. It will possibly be way too religious later, as he gets older. But that can be his decision. He is welcome to stay there till grade 12 or change schools. He just has to be happy!

Tova not feeling well and sleeping on the deck in the sun

Future Footprints + boys

Future Footprints was great. It's pretty much like magic, probably because I'm not quite sure what they do all day but the results are very obvious and very wonderful.

Just before we went to Adelaide Tova had her 4th lot of Stem Cells. So that could be a contributing factor to her greatness. But Conductive Ed does seem to have great results.

The last week was good. I'm not sure what happened to Summer this year. But when the boys arrived for the last few not so hot days we still made sure we had frequent, yet a little chilly beach visits.

It was great having the boys arrive at the end of the trip and driving home with us. It was better that way, less crying on my part.

The drive home was long, long, long. We ended up staying somewhere I'm not quite sure where, for the night. Tova was crazy pants nuts! I pretty much had no sleep, Yuval almost no sleep and Nissim for some reason slept through it all. Tova was acting as though she had been stung by a bee or given some speedy drugs. Climbing walls, investigating every bed and everyone in each bed (mostly me) and really being difficult. So, that was 'fun'.

hotel/motel

Week 2 of FF

Tova destroying Sand Castles at West Beach
Tova destroying Sand Castles at West Beach

Future Footprints Week 1

The sun vanished, the cold and rain came. Great.

Tova has had a great week at FF. She is happy, they are happy, I am happy.

We were going to the beach each day after class, but then it got cold. I feel like I’m in winter. It’s just horrible. Summer hasn’t really kicked in this year. Such a shame.

Today Tova and I went to the movies at Marion. We watched ‘Annie’, the re-make. It was really fun, perhaps a bit long, but we had nothing better to do.

We had lunch and then cake in Marion, it is a very expensive place to eat.

On the drive home Tova spotted the big pool with the massive water slides and requested that we go there. Gawd.. It looks scary to me. Perhaps I’ll get brave tomorrow or next weekend.. We shall see.

Other than that, we have pretty much just spent our time on Google plus video chat with the boys and eating.

Rain again tomorrow. Perhaps we will go to the city and have a look at city market, or ummm, I’ll google something to do, there doesn’t seem much to do indoors that doesn’t involve shopping.


Sunday 11 Jan 2015

It's sunday today, the day wasn't so sunny so the beach wasn't in play. I asked Tova what she wanted to do today, she signed that she wanted to go to the city. So we did. I thought it would be nice to check out the central market, but of course, after spending ages finding parking, it was closed. So we walked to the mall and had lunch. Sushi of course. Tova was asking me about the ballet and the city today, heaps, I think she thinks that going to the city means going to see the balet, because we often do that in Melbourne. CUTE.

After lunch and walking for ever to get back to the car we went to the supermarket and then back 'home'. The sun came out, sort of, well it was reasonably hot. So we went to the beach for a while.. YAY!

Tova at West Beach Adelaide..

Day 3 - Future Footprints 2015

Tova and I are on Adelaide time now, yeh, it’s only half an hour difference, but that can mean the world at midnight and 6am. We are in sync now.

Tova was very happy to go to ‘Adelaide School’ this morning. It’s so great that she loves it so much. It was a very hot and very beautiful morning. I went for a swim and what not. It’s such a nice life. I did loads of work today too. I got some internet sorted out than goodness.

When I picked Tova up the Thunder started. Tova luckily didn’t want to go to the beach. I think she is tired. She wanted to watch ‘Home Alone’, so she did. Yuval express posted me my dongle and the prescription for Pred as I had forgotten to bring Pred with me, so Tova and I went to the chemist after her movie, it started to bucket down, I’m glad Tova asked to drive rather than walk, because even though the chemist is around the corner, we would have got soaked.

The lightening was impressive. Tova thought so too. And because we are on the beach the thunder roared so loud it shook the ground.

The bucket bath has saved my life, it’s so great. Tova is in bed now. I can hear her playing, not sleeping.. it’s almost 9pm.. Maybe bedtime needs to change these days.. Both kids don’t seem to go to sleep at 7.30 anymore.. Hmmmm. Might have to talk to friends with kids the same age and ask around what bed time is these days.

We do it all again tomorrow. I hope it stops raining, We want to play! Especially on the weekend. There is a great park across the road. I guess if it rains it’s a good excuse to go to the movies or a shopping centre.

Days 1 & 2 of Future Footprints 2015

Internet has been a bit tricky. But it's mostly sorted now.. hopefully. And if not, Yuval has express posted me my dongle.

Our hotel and the people that run it are amazing. We are so happy here. It's newly renovated, bright, white and on the beach

Our first night here was a bit noisy, listening to the people (mostly kids crying and so forth) in the other apartments. But perhaps I’ll get used to it. Or go buy ear plugs.. I may even go join Tova in her room as it seem to be a bit quieter. Tova slept well. She stayed in her bed all night and was asleep when I got up.

I dropped her off at the therapy and she was at home right away. She remembers the pace and the people. I didn’t stick around for long. I then went to find a fruit and veg shop, but remembered that they don’t really exist here. So off to the supermarket I went.

I decided that the supermarket in the Adelaide DFO would do just nicely.. I went to about 6 shops, got bored, supermarket shopped, got even border and went back to the apartment.

My day was mostly wasted trying to sort out the internet. I gave up getting any work done.. Sorry clients!

I picked Tova up (Tova’s friend from school is here too, in the apartment next to ours, and is also doing future footprints, so we drove in together). Tova was very happy to see me. She is such a little light.

I had set up our bathers earlier in the day so that the second we got home, we got changed and went to the beach. It was great fun. Then home, dinner, books, bed etc.

Day two has been some what the same. But this morning I did a body attack class, swam at the beach and then tried to fix the net. Gave up on doing work for the day. Again, sorry clients. It’s out of my control.

Tova and I went swimming again after her ‘school’. It’s quite the life here!

I hope to have the net all sorted 100% tomorrow so I feel like I will settle in and start a routine. I’ll also find out what Tova is up to all day. She is probably going to be more settled by the end of tomorrow’s session.

There is no bath here, and that’s quite back breaking with a Tova, so I went to Masters today and got a VERY large bucket. It’s Tova size. She used it as her bath tonight. Cute.

Bucket shower bath to save my back. It's great.

Kaniva - Adelaide

We slept with the air con on because there was quite a lot of smoke in the air. Tova played musical beds for hours before passing out. I lost my calm a few times, which she LOVES for some reason. It makes her laugh when people shout at her "STOP IT" and so on.. Which only made me want to kill her more.

Eventually she did fall asleep, next to me in my bed. (there were three beds in our room). We woke at 7am ish. We were ready to leave by 9ish. Yep, it takes us that long to get ready. We obviously weren't in any hurry.

We drove and drove and drove and drove and drove and drove and drove, with quite a few stops here and there. No rain, no smoke and no wind. It was easy. It was a long drive but eventually we arrived at Adelaide just before 2pm.

Where we are staying is very, very similar to Brighton beach. Beach one side and our apartment the other side of a busy enough road. NOT BAD!!! The apartment has just been renovated and looks absolutely brand new. It’s lovely.

Once we unpacked we went to the supermarket and got a few things for dinner. Not much is open on a Sunday in Adelaide.
After dinner Tova and I went to the beach across the road. She was delighted. We put our feet in the water and let the waves crash on us. It was so much fun

Summer time in Adelaide. We love the beach

Melb - Kaniva Road Trip

Tova and I drove from about 10.30 till 5ish. We made it to the same hotel as last year. It's just of fun to be in the same hotel. We feel like regulars.

Tova and I talked and looked out the window for the first 2 - 3 hours. The drive was reasonable, no somke from bush fires, no road blocks from bush fires, just some wind.

We stopped and hand lunch in the same parky bit as last year too... just by fluke. The wind seemed to get a bit stronger the futher west we drove.

I put on a dvd for Tova for the rest of the trip.

I was listening to the radio, which was telling me about fires and storms.

Apparently I was heading right into a crazy pants storm with massive hail stones and high winds etc.. Yep, they were telling the truth. IT WAS SCARY! Thank you very much for that universe! I had to pull over at one stage because after the car was almost blown off the road the rain decided to make the road invisible.

It was a bit tricky to find the side of the road, but I did, and pulled over as did the car in front of me. Scary.

I was shaking.

The car was shaking.

Tova was happy. I love that kids feel safe with parents.

The rain stopped a little bit so I drove on very slow for a bit until there was a rest stop. I pulled up for a while and waited it out. It didn't take long. The storm passed, we carried on. There were many times where the wind didn't like my car driving in a straight line, but we managed. slowly.

After Horsham the world seemed to calm down and we watched the smoke from the bush fires out the left window.

Now at Kaniva. That was enough driving for one day. We now only have a short 3-4 hours tomorrow.

Tova requested to watch the nutcracker ballet, so that is what she is doing. I'm just sprawled out on a bed in this motel too tired to move. It's funny how sitting in a car all day can make me so tired.


For some reason Kaniva has these sheep everywhere.

Future Footprints 2015

  • Tova destroying Sand Castles at West Beach

    Week 2 of FF

    Tova destroying Sand Castles at West Beach

    Read More
  • Future Footprints Week 1

    The sun vanished, the cold and rain came. Great. Tova has had a great week at FF. She is happy, they are happy, I am happy. We were going to the beach each day after class, but then it got

    Read More
  • Storm in Adelaide January 2015

    Day 3 - Future Footprints 2015

    Tova and I are on Adelaide time now, yeh, it’s only half an hour difference, but that can mean the world at midnight and 6am. We are in sync now. Tova was very happy to go to ‘Adelaide School’ this

    Read More
  • Tova bucket bath in the shower.

    Days 1 & 2 of Future Footprints 2015

    Internet has been a bit tricky. But it's mostly sorted now.. hopefully. And if not, Yuval has express posted me my dongle. Our hotel and the people that run it are amazing. We are so happy here. It's newly renovated,

    Read More
  • Summer time beach in Adelaide

    Kaniva - Adelaide

    We slept with the air con on because there was quite a lot of smoke in the air. Tova played musical beds for hours before passing out. I lost my calm a few times, which she LOVES for some reason.

    Read More
  • tova and I road trip from melbourne to kaniva in bush fires and storms

    Melb - Kaniva Road Trip

    Tova and I drove from about 10.30 till 5ish. We made it to the same hotel as last year. It's just of fun to be in the same hotel. We feel like regulars. Tova and I talked and looked out

    Read More
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Happy New Year 2015

Tova has made it pretty much ONE ENTIRE YEAR with no ER visit nor an Ambulance ride.

Nissim has completed Prep and moves to Grade 1 this year. Tova has finished grade 1 and is going to grade 2.

Tomorrow Tova and I are going to Future Footprints for their 3 week therapy program in Adelaide. We will drive. In the morning I’ll load up the car and we will leave when we feel like it. I love not flying.

I have started packing some bags and pretty much have just thrown most of our summer clothes into a bag, I never get to do that when flying.

Tova got a bike the other week too, so I want to take that. I’m not sure if we will have enough room. But I do have roof racks.

The boys are staying home. It’s a long time to be away from them. But at least it’s not as far as Canada, Thailand, Austria and every other place we have been for therapy

.

Happy New Year 2015

Awards

So, the other night we went to Tova's school awards night. For the primary school. It was great. I was surprised.
Tova was very excited to go. It started at about 7pm, so it was a late night & fun to be at school at night time.
There were organised games and activities, Tova loved it. It was really nice to see her so enthusiastic, which in turn made us feel involved.
I really love her school.

Then there was an awards ceremony. 4 awards were given out in the primary school. Two for bravery and two for literacy.
TOVA WON (achieved) A LITERACY award!
Our precious non-verbal princess! We are so proud! She is so lovely and so clever!

Her Auslan is pretty great these days.

Yuval and I also completed our TAFE course 'Cert 2 Auslan' the other day. That feels good. Cert 3 next year.

And the little boy, tomorrow is his last day of prep. I can't believe it. Where did the year just go? It's very cute talking to him about being a big grade 1 next year.

Tova with her literacy award 2014

World Premmie Day

Apparently today is world premmie day. What ever that means..

I'm not sure if it is a celebration or a nightmare memory.

I do know my kids are strong.

This is a photo of possibly the first hold I ever hand with Tova, months after she was born. And the hand print she left on my chest once I gave her back to the Humidi Crib. I almost ran out and had it tattooed on me!
This is a photo of possibly the first hold I ever hand with Tova, months after she was born. And the hand print she left on my chest once I gave her back to the Humidi Crib. I almost ran out and had it tattooed on me! 2007

And my boy!

Tiny New Nissim
Tiny New Nissim 2008

Photograph

After having a think about it, I hate my photo being taken because I see my self as hideous to look at in many photographs. Of course I know I am far more critical about myself than anyone else. Perhaps because I was bullied at school and am acutely aware of all the body parts that those bullies ensured I would be aware of for the rest of my life (stupid bullies, thank's for that!).

And photos of my kids being put out there in public makes me nervous, I guess I feel that it some how takes away their identity a little bit. A photo shows only a fraction of them, yet photos can be so deeply judging, at least, people can be so deeply judgie. Or something. However...

Jewish Care are raising money for new buildings. They asked if they could take a photo of Tova and her family. It is really hard to get the 4 of us together at one time. So, it ended up being a photo session with Tova, Nissim and me.

It is strange to me that the 'selfie' is such a big hit at the moment. I often wonder why and how people find it so easy to put their face out there for everyone to see, online.

I walked past someone using a 'selfie stick' the other day. How amusing.

Here is a pic of Tova and I.

Tova and I

Stem Cells

Stem Cells are biological cells found in all multicellular organisms, that can divide and differentiate into diverse specialized cell types and can self-renew to produce more stem cells. In mammals, there are two broad types of stem cells: embryonic stem cells and adult stem cells, which are found in various tissues. In adult organisms, stem cells and progenitor cells act as a repair system for the body, replenishing adult tissues.

Photos

Here are some pics of the last few days in Canada.

View from our hotel room window

Tova looking at/touching the waterfall

Looking out Hotel Window

In the shops buying touristy stuff

On the train towards Toronto

Sleeping on the mattress on the floor surrounded by anything I could find so she wouldn't fall off. In the hotel near the airport on our last night in Canada

 On the plane in LA waiting for take off. It was after midnight for Tova. She was done.

Adelaide Future Footprints

Blog: Adelaide - Conductive Education

As of the 28th of November 2013 we are booked in and confirmed!!!

Tova will attend the intensive Conductive Ed program during the entire month of January 2014. 7 Hours a day 5 days a week!

Again we will leave the boys at home. At least this time they are much closer and a $40-$60 plane ride if we need them.

When we got back from Canada I found a Conductive Ed program in South Aus. Actually I found a few all around Australia, but the one in SA was just about to start up an intensive therapy program, similar to the one in Canada.
I contacted the owners and had a chat or two. It just so happens that the lady that runs the one here in Adelaide, went to uni and even shared an apartment with the lady that runs the program in Canada. Small World.

No-Tube Weaning

Introduction to Graz - Graz Can Help You Teach Your Child How to Eat

Special feeding counselling for children with feeding tubes

NoTube was founded to help children around the world to overcome the severe condition of tube feeding. The ultimate goal is to teach the child how to eat for the first time in its life while simultaneously removing the feeding tube.

Based on more than 20 years of clinical experience the online medical coaching platform Netcoaching has been specifically developed for parents of tube dependent children.

  • Individual tube weaning program
  • 24/7 support from the medical experts
  • Child stays at home in its familiar environment
  • Success rates of over 92%

See the Graz Website for More

Croup.. but no hospital

Tova woke up at 6am ish on Sunday morning breathing horribly. So we gave her pred.

As usual Pred makes her look like a vampire. She was happy enough, but a little bit flat.. So we canceled our fun events for the day and spent the day looking after ourselves. 

I like to keep her close to me when she gets croup so I can listen to her breathing. She was breathing wasn't great, but not hospital worthy.

She woke this morning breathing fine, after sleeping very well last night.

It is great to see that things are hopefully finally changing regarding the croup.

I have been sick for about 3 weeks. I usually get this cough and feeling crap in August, maybe that is why I have babies born so early in August?

In other news, Nissim and 5 of his school friends had a joint birthday party. They decided that instead of presents, they would like people to donate some money to Jewish Care Children Respite House. They raised over $1200. I'm so proud & Jewish Care are so grateful! They are such good kids. 

All the kids are 6

So, both kids in the house are 6! 

Tooth Number One! For The Boy

Nissim came home from visiting his friend Violet (they have been friends since they were about 3, they were best friends at creche and have kept the friendship even though they haven't attended the same school/kinder for about 3 years, which is lovely).

He was all excited to tell us that he had swallowed his wobbly tooth and that it would come out in his poo! hehe. 

He said he didn't even notice until he went to wobble it with his tongue and it was just 'gone'. 

Cute. 

foggy horse riding
Morning horse ride in the fog

 

Tova has recently had her second lot of stem cells, we shall see what comes of that. The first thing I noticed was her desire to walk (aided) and not be carried.

 Here is a pic from horse riding the other day in the fog: 

Wobbly Tooth

2014-07-23

Nissim has his first Wobbly Tooth! It is pretty exciting. He looked quite shocked when I told him.. He is a funny one, a bit of a wuss.. :-) But then he realised that I was very excited and he decided that he would go with it being fun! We have been talking about the going rate of the tooth fairy these days. I have been informed that it is more than $1 now. 

I'm not feeling very well today.. So I went to get a prescription of pred filled incase Tova gets sick. The prescription had expired so I had to go beg a doctor to give me a new one without seeing Tova.. that was fun.. 

Tova is going really well with walking. She doesn't really use her walking frame anymore and has moved onto using walking sticks. 

I have invited all Tova's class mates to her birthday party and have only heard back from ONE person. It is very strange. I am also surprised that not one person has invited her to their party this year. Either no one has parites, or she isn't popular? The teacher says that the kids don't seem to have parties, so she has been giving them one at  school when it is their birthday. HOW STRANGE... Well we will be happy to have the party with her one class friend and the other couple of friends we invited from outside of school.. 

Hello Croup. Hello ER

2014-06-19

Hi croup. Not nice to see you!

Oh well. I had a feeling that it was too good to be true.... not being in hospital since January..

Tova slept a bit badly the night before last and ended up sleeping with me (yuval went and slept in her bed). But she was breathing fine and she woke happy.

Last night she woke crying again and came to my bed again, swapping beds with Yuval... again.. that was at about midnight. At 4am she woke with stupid breathing. There was no fresh pred in the fridge and no 24 hour chemist that I know of. ... So off to hospital. We went straight in and not long after Tova was given Pred. We are home again now 7am. Tova is happy, watching The Wizard of Oz - the original.

I imagine that if we had a fresh bottle of Pred we wouldn't have ended up in ER.

No school today for Tova. We will stay home together and keep warm n cozy.

Assignments and Walking

2014-06-07

I have an assignment due next week for my Auslan course. So, I'm procrastinating here. The assignment is pretty massive and boring not to mention written terribly, not my answers, but the questions. Tafe is quite different to uni. I remember assignments being hard at Uni, but not because they were written so terribly. This one is hard also because it requires so much research and i have a lack of interest in the subject matter. Some of it is interesting of course, I am a fan of lots-of-things-history, but the pressure is on and I just don't feel like writing about what I am reading. 

Some things that are interesting, The Deaf Community hate cochlear ear implants, especially if people opt to have two. I didn't know that, now I do.

Deaf people in history, way, way back were considered 'less than human'! 

AND - Hitler sent deaf people off to concentration camps, simply because they were deaf. 

Oh and another really odd one is that when society did decide that Deaf people were worth educating, there was a catch, they could only be taught by hearing teachers that could not sign, and no sign language was allowed. If a student tried to sign, they would have their hands either caned or tied behind their back, probably both at times too.. 

In other news. Tova's teacher wrote to me the day after I approved Tova wearing a helmet at lunch time (so she could walk around using canes, not her walking frame), without giving teachers heart attacks when she falls.. well the teacher said Tova walked all the way down the school corridor (which is long) before she decided that crawling was her preferred option. So, there is that! Which is completely astounding. 

I ordered canes at the beginning of the week after I was told that the funding for Tova's bike (over $1k) had fallen through for what ever reason. So they should be here (just the canes) some time next week. I hope. 

Nissim has been on school holidays all week, which has been nice for me to spend some time with him, just him and me! He is such a little dude.